WI - Madison

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Arthritis Support Network launched: 2015

Arthritis Support Network Leader: Deb                   Type of Arthritis: Rheumatoid Arthritis

About this Arthritis Support Network:                                     

Working together, we will create a welcoming warm sharing atmosphere!  I see the group as a place where especially those with little to no support system at home can come and feel heard, understood, and cared about.  I believe that the group can serve both as a point of emotional strength and as an educational group.

About:  Deb

Hi Everyone!!  I'm Deb.  I have had RA since I was 13 years old.  My background for schooling is I graduated from Mount Mary College with a double major in Dietetics and Biology.  I have been the Board Chair for the Leadership Board of the Upper Midwest Region for the Arthritis Foundation for about 2+ years and Board Member for 3+ years.  I am the Advocacy Chair and an Advocacy Ambassador for AF.  I am involved with the arthritis community.  I have had a knee replacement, wrist fusion and 2 cervical neck fusions.  I have SPAD- (Selective Polysaccharide Antibody Deficiency) and MGUS (Monoclonal Gammopathy of Undetermined Significance).

I enjoy Advocacy and am empowered by telling my story.  We all have so much to share and learn from each other.  I am honored to serve you as the co-leader of the Madison group.  Having an Arthritis Support Network in Madison will open more doors for support and knowledge.  We live in an area where this type of support group is sorely needed.

Contact: 

To join this Arthritis Support Network, please click the “Subscribe to Group” link above.

Meeting Location and Times: 

Head over to the Calendar of Events to RSVP your attendance.

Complete details with location and times will be posted on this website and cross promoted to our Arthritis Support Group Madison WI Facebook page. Please like and follow us!

Activities: 

All subscribers to this group agree to adhere to the Support Group Participant Guidelines

 

Comments

Submitted by Rebecca on
I am looking to meet others who are like Me and live this life. It is hard to find those who understand and knowing someone lives it everyday helps.

Kirsten Schultz's picture
Submitted by Kirsten Schultz on

We're SO looking forward to meeting you! I hope that you can join us on the 21st :) Happy Friday!!

Deb's picture
Submitted by Deb on

Hi Rebecca,

We have another event planned on March 26th 1-3pm.  Come join us!!  Please sign up for the March date and subscribe to our group so you will get timely emails!!  Would love to meet you and learn more about you!!

Deb

Emily Kessens's picture
Submitted by Emily Kessens on

My rheumatologist said I have to meet you guys. Looking forward to it. 

Deb's picture
Submitted by Deb on

Hi Emily,

 

We would love for you to join us on April 30th from 1-3!  Look at our page and sign up there!  We would love to meet you and your Rheumy is right....we kind of Rock!  HaHa!  All joking aside...we would love to get to know you and help you in any way we can!!

 

Questions ....  call or text me  Deb Constien 608-347-4736

Deb

Deb's picture
Submitted by Deb on

Hi Laurie,

 

We would love for you to join us at our upcoming meeting on April 30th from 1-3pm!

Kirsten and I would love to find out your interests, questions and how we can help!

Go to our page and you can sign up there ... at the RSVP!  

Looking forward to connecting with you!!

 

Deb Constien!!

Submitted by Ev Kry on

Hi, 

I have been diagnosed with RA just less than two months ago. It was devastating to find out that 

I have an incurable decease. Luckily I found Paddison program and working towards learning 

to manage RA so that I can be pain free and drug free. Would love to meet other people who deal 

with similar issues locally. 

 

Ev

Submitted by Ev Kry on

Deb,

  I have checked the calendar and don't see any Madison RI meetups for July, August or September. 

Are you planning on doing one soon?

Also, I have not seen any information about RI at the UW-Health RA clinics. How are you reaching out  

to the community to build up a support group? I am willing to get involved in local community events 

and share my experience since it's been positive and remarkably different from a lot of stories that I read.

 

Ev

Submitted by Linda Egleston on

Hi, I have been a member for 3 months and have not heard of any meetings. I was really looking forward to meeting others that share the same "life" as I do I have RA. Thank you in advance and have a great day!

Submitted by Ev Kry on

I would like to have an informal meet-and-greet in August. Could we have a Doodle poll for the dates/times that work best for people?

 

 

Deb's picture
Submitted by Deb on

Hi ladies,

 

We have gone through a few bumps in the past months.  It was hard to schedule any meetings between my schedule and the other co-leader.  She has now stepped down and yes....we are having another "restart"!!  I am scheduling meetings for September and October tomorrow!  Thanks for hanging in there Linda and Ev....and the rest of you!  I have lots of ideas to throw past you.  I might even have a new co-leader!  

Thanks

Deb Constien

Submitted by Mary on

Hi! I am new to this group and come with a relatively new diagnosis of RA. I am so happy to come to this group, learn more about this arthritis, and hear how this condition has affected others.  I cannot attend the Sept Launch meeting due to a previous engagement. But, I plan to go to Columbus on Oct 12 and attend the Lunch and Learn, and the Madison-coffee time following. Hope to meet you soon. Mary Weaver

Submitted by Lorene L Wendricks on

Hi I am new to this group.  I have a compression fracture in my back, Rheumatoid Arthritis for about 10 years, and now have been diagnosed with Osteoarthritis and because I have been on Prednisone, I have osteoporosis along with lumbar spinal stenosis.  Looking forward to learning new things.  Lorene Wendricks

Submitted by Ev Kry on

Hi,

  I work, so 11:30a.m. is not in option even in Madison for me. I am not sure how many can make it. 

Could we have a local, as the group says, Madison based meetup at a time when working folks

can make it? The group is so small that we could meet in a coffee shop. How about having meetups 

where people could have more discussion time and meetings where you can do educational events. 

I would love to share my experience with inflammatory arthritis of the last 5 months and hear what 

the situation is for other people.

Ev

 

Groups audience: 

Deb's picture
Submitted by Deb on

Hi Ev Kry, 

The meeting time for October was just to take advantage of the Columbia hospital's informative session.  I agree, that time is not good for those who work.  That's why tyically I try for Sunday afternoons..... yes, the one meeting was during the Packers, but I won't do that again..Haha!  I'm scheduling our next meeting for Nov. 20th 1-3.  My hope is to get a group together so we can discuss a preferred time, as well as places that folks want to go to!  All of your suggestions are everything I've thought of but I'm trying to get us together to talk about those things.  I will also start a discussion on the facebook page https://www.facebook.com/ArthritisIntrospective.Madison.WI/  

Thank you for your interest and I'd love to have you part of the group!!  

 

Deb Constien  

Arthritis Introspective

Arthritis Support Network Leader Madison, WI

DebConstien@ArthritisIntrospective.org

C: (608) 347-4736

 

 

Groups audience: 

Deb's picture
Submitted by Deb on

Hi Tony,

 

I just posted February's Meeting and March's Meeting.  February's date is the 12th from Noon-2 at the Egg &I in Madison off the Beltline.

March's date is on the 26th.

 

You should recieve the emails I sent to the group.  I saw you were signed up for the January's meeting but didn't make it.  Hope you will be able to join us for maybe Feb and March.

 

I look forward to meeting you!  My email is debconstien@arthritisintrospective.org  

Please email me with direct questions!

 

My Best,

Deb

Groups audience: 

Deb's picture
Submitted by Deb on

Hi Ev,

I have scheduled a few meetings and hope you will join us.  I am unable to send you a direct email as you didn't include your email when you joined our group.

 

Please reach out if you have any questions!  Would love to get to know you!

debconstien@arthritisintrospective.org

 

Deb

Groups audience: 

Submitted by Jennifer Medler on

Hello,

I'm unsure how to go about this but I am in need of some help in either figuring out a new way to talk to my rheumy or to find a new one. There is a lot of detail to this so I'm unsure if this should be put in a comment or private message to someone.

Looking for support with an odd situation

Jennifer

Groups audience: 

Arthritis Support Network Leader(s)

Deb

Goals

Arthritis Support Networks provides personalized help and support to adults living with all types of arthritis and rheumatic conditions. Our programs offer opportunities for connection, education and empowerment via support groups and conferences.

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