To join this Arthritis Support Network and receive email updates, please click the “Subscribe to Group” link above.
Arthritis Support Network launched: 2016
Arthritis Support Network Leader: Barbara Type of Arthritis: Sjögren's Syndrome
About this Arthritis Support Network:
My vision for this group is to connect with people living with arthritis and/or other rheumatic conditions for positive coping strategies and uplifting support. I want to provide a fun, affordable, relaxed, informative, and positive haven where people feel valued and at peace.
My name is Barbara. When I turned 30 years old I was "gifted" with a rheumatic condition called Sjögren's Syndrome. I didn't know what it was, and I work in healthcare! Only recently have I actually started to see literature calling this condition "Sjögren's Disease!" And it is a disease!
So this is progress people!
Anyhow, part of Sjögren's for a large majority of people is an elevated RF (rheumatoid factor) blood titer level. An elevated RF is most commonly associated with Rheumatoid Arthritis. Sjögren's is basically a crossover disease between RA and Lupus with some extra "fun stuff" (like all your moisture glands drying up) thrown on top. It's known for "dry eyes" and "dry mouth" but as anyone with connective tissue disease knows. ... Our whole bodies are affected!
So I'm in the chronic pain - Spoonie warrior fight with you. I've been through denial. I've been through despair, depression, and anxiety. I have a slew of specialists. I've done a great job at adding more autoimmune conditions to my medical history (Fibromyalgia is a nuisance..) and I'm here today with acceptance, optimism, and a strong desire to connect with others like me for education and support.
These conditions prepare us for this world in a unique way. They shape and mold us for a special purpose. My vision for this South Carolina-based group is to have a collection of patients and their loved ones connect and meet for positive support, encouragement and growth. I hope you'll join us.
To join this Arthritis Support Network, please click the “Subscribe to Group” link above.
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