MO - St. Louis

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Arthritis Support Network launched: 2016

Arthritis Support Network Leader: Jessi                      Type of Arthritis: Rheumatoid Arthritis, Fibromyalgia & Osteoarthritis

Arthritis Support Network Leader: Kristina                  Type of Arthritis: Osteoarthritis, Psoriatic Arthritis & Fibromyalgia

About this Arthritis Support Network:  

Our vision for this support group is to provide a welcoming, fun and supportive network to those living with Arthritis and Rheumatic conditions in the St. Louis area.  A goal of ours is for this support network is to foster an environment where my group participants come out of every meeting feeling understood and empowered.  We want to help people get support, information, and education. The more we know and better equipped we are, the better we can advocate for ourselves and manage a chronic illness. Bringing people together is a huge component in thriving with arthritis, so in that case, let’s have some fun and get to know each other!

About: Jessi

I was diagnosed with Rheumatoid Arthritis in 2014 and Fibromyalgia in May of 2016. Prior to the onset of RA, I was very active. I loved the outdoors, camping, hiking, traveling, exploring. RA changed all of that very quickly. It seems as if overnight, I went from being a participant to a spectator. To cope with my new reality, I was determined to educate myself. I've read every book, blog, study, and medical journal you can imagine. I found a Rheumatologist I was comfortable with. He and I have discovered a concoction of medications that are helping me to lead a more active lifestyle. All of the knowledge and medication in the world, however, couldn't help me handle the emotional aspect of living with a chronic illness. I am learning to accept and love the new me a little more everyday.

I couldn't possibly be more grateful for the opportunity to be an Arthritis Support Network Leader. I am looking forward to developing a group of friends who learn from one another, support each other and have a whole lot of fun!

About: Kristina

My name is Kristina. I am 52 years young .... Ouch!!! I am married to my wonderful husband Leon and I have the most amazing and I think perfect 16-year-old son named Ian.

I have been a personal trainer/health coach for 35 years. So, I am well aware of the importance that health and fitness plays in treating rheumatoid, osteoarthritis, osteoporosis, psoriatic arthritis, spinal stenosis, fibromyalgia & more. Part of my background is that of a Corrective Exercise Specialist which means I have extensive experience working with special populations. I have trained and helped several clients with such a debilitating conditions.

Flashback to summer last year. I was on top of the world. Helping people improve the quality of life has got to be the most rewarding reason for my career choice. Not only do I love my work, I also compete in the NPC ( National Physique Committee). I'd like to push myself and see what I can do to better improve my health, physical, and psyche. Through my competitions I am able to inspire others younger, older, with condition, et al

I was going to compete in a national level competition and helps to when my IFBB (International Federation of Body Builders). But my body had other ideas. I have already had my left and right hips replaced. But my left hip started giving me a tremendous amount of pain. My back also has osteoarthritis above and below A spinal fusion at my T11-T-12 vertebra.

In December I had the nerves in my lower lumbar burned so that they may brow back healthy and stronger. In January I made the decision to get my left hip revised which is an extraordinarily extend i in January I made the decision to get my left hip revised which is an extraordinarily extensive surgery. My surgery was set for Friday, April 13 - no joke. The day prior to my surgery I was diagnosed with fibromyalgia and psoriatic arthritis. The surgery was a success. My surgeon was brilliant. I had to stay home bound for six weeks. During that time, I did a lot of fund-raising for the Walk to during that time I did a lot of fund-raising for Cure Arthritis. And I absolutely fell in love with the Arthritis Foundation. The ladies in the St. Louis office has welcomed me with open arms. And I plan for it to be a long and lasting relationship.

I am leading this group with Jessi while I am a personal trainer/coach and athlete I too live with from osteoarthritis, psoriatic arthritis, and fibromyalgia. Although I may have these diagnosises, it will not define me, control me or defeat me.

I would like to be a beacon or an inspiration to others to keep going and to strive for a better life regardless of our conditions. I believe I can bring a positive attitude & environment to those who need such. I have a background and the resources to help and encourage and enrich our community.

Contact: 

To join this Arthritis Support Network, please click the "Join this Group” button above and we will send you updates about upcoming events via email. 

Meeting Location and Times: 

Head over to the Calendar of Events to RSVP your attendance.

Complete details with location and times will be posted on this website and cross promoted to our Arthritis Support Group St. Louis MO Facebook page. Please like and follow us!

Activities: 

All subscribers to this group agree to adhere to the Support Group Participant Guidelines.

 

Type: 
ASN

Comments

Cheryl's picture
Submitted by Cheryl on

Warm greetings,

I am new to this group and wanted to say hi.

Cheryl

 

Groups audience: 

Jessi's picture
Submitted by Jessi on

Welcome, Cheryl!! Please forgive me for missing your message. I am new to this online format. Our first meeting will be in January! I would love to see you there. If you haven't already, please be sure to find our group on Facebook, Arthritis  Support Network St. Louis MO!

Groups audience: 

Jessi's picture
Submitted by Jessi on

Hi Vicky and welcome! Our next meeting will be August 19th from 3-4:30pm. You will receive an email soon with more details. Hope to see you there!

Groups audience: 

Submitted by Riegie on

Hello, I am new to RA and need someone to talk to with my same issues.

Groups audience: 

Meaghan Anselm's picture
Submitted by Meaghan Anselm on

I justed wanted to let everyone know that the next meeting is Saturday, October 20th from 3:00-4:30pm at the Arthritis Foundation office located at 9433 Olive Blvd., Suite 100, under Alpha Dental with our own entrance and parking behind the building. Hope to see everyone there.

Groups audience: 

Arthritis Support Network Leader(s)

Jessi

Goals

The Arthritis Support Network provides personalized help and support to adults living with all types of arthritis and rheumatic conditions. Our programs offer opportunities for connection, education and empowerment via support groups and conferences.

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