Arthritis Support Network launched: 2017
Arthritis Support Network Leader: Lindsay Type of Arthritis: Polyarticular juvenile rheumatoid/ idiopathic arthritis
About this Arthritis Support Network:
Together, this group will learn to cope with rheumatic diseases and thrive through face-to-face interactions including empowerment, emotional support, education, and shared experience.
I am a graphic designer living in St. Joseph, Missouri. I have lived with polyarticular juvenile rheumatoid arthritis for over half of my life, with a diagnosis at age 16. In my 30s, I was diagnosed with fibromyalgia, chronic bursitis, and osteoarthritis in addition to my original diagnosis.
Years of coping with chronic pain and stiffness led me to yoga, exercise, and meditation. I have been able to maintain function of my body through these techniques in combination with medical intervention.
I enjoy baking and decorating cakes for my family's special occasions, spoiling my nephew and nieces, and reading.
I first got involved with the Arthritis Foundation when my mother worked for our local rheumatologist's office. In fact, I attended JA events before I was ever diagnosed because my mother was working at these events. In adulthood, I participated in the Walk to Cure Arthritis and am now on the local committee. In 2015, I joined the Kansas City Young Adult Committee, where the general consensus was that we need some type of support group geared towards young adults. I chaired the committee in 2016. I have volunteered for several local events including the Walk to Cure Arthritis, Art for Arthritis, a Young Adult Committee fundraiser, and Jingle Bell Run. In May 2017, I was the local Adult Honoree in the Walk to Cure Arthritis.
I volunteered on the steering committee for the 10th Annual National Gathering Conference in 2017. That was the first time I participated in a national event for the Arthritis Foundation and my first interaction with the Arthritis Support Network. It was incredibly gratifying, motivating, and inspirational to walk into a ballroom full of other people like me, working towards the same goals and understanding each other. I left the conference with a ton of new information about my illness, healthcare, other rheumatic diseases, and my legal rights. I also left with about 55 new social media contacts, the desire to get involved in a more meaningful way, and the understanding that anybody could become a leader in some way. I am excited to play a role in bringing this type of enrichment to northwest Missouri.
To join this Arthritis Support Network, please click on the "Join this Group” button above and we will send you updates about upcoming events via email.
Head over to the Calendar of Events to RSVP your attendance.
Complete details with location and times will be posted on this website and cross-promoted to our Arthritis Support Group - Saint Joseph MO Facebook Page. Please like and follow us!
All subscribers to this group agree to adhere to the Support Group Participant Guidelines.