Arthritis Support Network launched: 2016
Arthritis Support Network Leader: Linda Type of Arthritis: Rheumatoid Arthritis
Arthritis Support Network Leader: Stephanie Type of Arthritis: Juvenile Rheumatoid Arthritis
Arthritis Support Network Leader: Irene Type of Arthritis: Rheumatoid Arthritis
About this Arthritis Support Network:
Our vision is to encourage, support and mentor more people with any form of arthritis to find their optimum quality of life and participate in various facets of our group to help it grow.
My personal experience with arthritis started with watching it impact my father when I was child at a time when the treatments available now were not an option for him. He tried every "natural cure" ( which still continue to cycle in and out of popularity) as well as mega corticosteroids. When I came down with RA when I was 17 years old, I was determined to maintain the best quality of life in spite of arthritis and have personally benefitted by the evolving treatments that are now available and were not options for my father.
I believe in a great truism that when you reach out and help others you also help yourself. My goal is to help encourage others to aim for the best quality of life. I believe through education coupled with encouragement that people with arthritis can maximize their lifestyle.
I am a college student diagnosed with juvenile rheumatoid arthritis when I was just five years old. Since then, I have made it my life’s mission to inspire and support others who are living with the condition through my blog, a personal narrative about the “emotional side effects of being young, disabled, and fabulous.” I find fulfillment in speaking publicly about my journey with RA, the value of effective doctor-patient communication, and emotion-focused coping. My goal is to "shorten the learning curve" for people newly diagnosed and families adjusting to the diagnosis. I am is determined to live life to the fullest and refuses to let her illness stop her from having hopes and dreams for her future.
As an individual living with Arthritis for over 20 years, I believe I can be a resource of knowledge, through my personal experiences. I would like to encourage my fellow young people to join our group and be a support for parents of kids with Arthritis. It has taken me years to become what I like to call an "empowered patient" and through being a leader of ASN, I hope to help other people with Arthritis become their own biggest advocates and experts on their health.
As a young person dealing with RA, for the majority of my life, my sincere hope is that we create a safe, welcoming environment for people with all types of Arthritis to vent, learn, and fellowship with one another. Arthritis can be an intensely isolating disease as the majority of people do not understand just how debilitating it can be--or that young people can get it too! My vision is to create a tight-knit group where everyone feels welcome, patients, and caregivers alike. I'd additionally like to personally welcome more youths dealing with arthritis and parents of kids with arthritis.
I was a Children’s Librarian. One day when a school group visited the public library I worked at, I noticed the children were holding their hands funny while doing a finger play with me. I looked at my hands and realized that they were imitating me. Later, I discovered that I had rheumatoid arthritis.
My hands have invited people to share their stories of arthritis with me. I have been able to tell them that it not only effects the old, but the young as well. I tell them that there are over 100 types of the disease. Belonging to the Arthritis Support Network is another way I can help educate, encourage and empower people with the disease.
I would like to see the existing group survive and thrive.
To join this Arthritis Support Network, please click the "Join this Group” button above and we will send you updates about upcoming events via email.
Head over to the Calendar of Events to RSVP your attendance.
Complete details with location and times will be posted on this website and cross promoted to our Arthritis Support Group South Miami FL Facebook page. Please like and follow us!
All subscribers to this group agree to adhere to the Support Group Participant Guidelines.